News

CIL Assistive Tech Program featured in Ocala.com

By Susan Latham Carr
Staff writer
Published: Sunday, January 15, 2012 at 11:10 p.m.

Fred Strelau uses an amplified telephone that he received free of charge from Florida Telecommunications Relay Inc., a statewide nonprofit agency that distributes special telecommunications equipment to Florida residents who have hearing and speech disabilities.

“We can hear the phone without any problems, even with my hearing aids off,” Strelau said. “It’s difficult to talk to people on the phone when you are hearing-impaired. You are continually straining to listen to what they have to say and trying to avoid asking, ‘What?’ or ‘What did you say?’ ”

Strelau and his wife, Sylvia, got the phone about 10 years ago when they moved to Oak Run in Ocala from Maine. Both have some hearing loss.

“It’s a godsend,” Strelau said. “It’s something — if older people would understand how to get it and how to use it — it would be a godsend to them as well.”  The Strelaus’ phone looks like any ordinary phone, except it has additional buttons at the bottom of the unit that individually adjust the tone and the volume. The ringer on the phone is adjustable as well. “I am sure there are many people who don’t know of this particular phone, and it happens to be free,” Strelau said.

FTRI has a number of models of phones and equipment to help those who may be deaf or have hearing and speech difficulties communicate. “FTRI is funded by an 11-cent tax on everyone’s land-line phone bill in the state of Florida, and businesses pay for up to their first 20 lines,” said Myrtle Hoffman, a program director for the Center for Independent Living in 16 counties, including Marion.

The Center for Independent Living distributes the FTRI phones in Ocala and Marion County. The Center is located at 3445 NE 24th St. in Ocala.

“It’s our responsibility to help promote and educate the community about the services,” Hoffman said.  Anyone in Florida who is a permanent resident, age 3 and older, is deaf, hard of hearing, blind or has a speech disability can qualify for this free equipment.  A variety of models and equipment is available to address particular needs.

For instance, there is a device, called an in-line amplifier, that attaches to the phone. It runs off a 9-volt battery and increases a phone’s volume and tone. And there are land-line phones that also adjust the volume and tone. Three also are loud ringers and visual ringers. Different models contain different decibel ranges. There also are cordless phones. The in-line phones are portable, which comes in handy if there is a power outage.

“You can take it to a hotel, or your family’s house,” Hoffman said.

You can come into the center to fill out an application. No financial or insurance information is required. “We don’t ask about your income,” Hoffman said.  And you can make an appointment to review the equipment to find what is most suitable. “Then we send the equipment home with you that day,” Hoffman said. There is even teletalk equipment for those who have had a laryngectomee and need a speech aid. And for those who cannot hold a handset, there are voice-activated phones.

If you do not live near a distribution center or prefer not to come into the center, you can mail an application to FTRI in Tallahassee. They will mail the phone to you via United Parcel Service or Federal Express, and they will pay the shipping costs. The disadvantage, however, is that the equipment is unassembled and you do not receive training.

If your hearing changes or the equipment malfunctions, you simply contact the distribution center to make  an appointment. They will examine the equipment and, if necessary, provide a new piece of equipment. “For those who are home-bound, we will go out to their home,” Hoffman said, provided there is a doctor’s note to that effect.  According to the 2010 U.S. Census, there were 331,298 people in Marion County. Hoffman said 16 percent of the population, or 53,008 people, have hearing loss.

“We served from July 1, 1991, to Dec. 1, 2011, 14,945 of those individuals,” Hoffman said. Last year, FTRI served more than 2,200 individuals in 16 counties. “It helps keep people connected. It gives them their independence back,” Hoffman said. “We take pride in taking care of our consumers.”

Contact Susan Latham Carr at 867-4156 or susan.carr@starbanner.com

Agency provides phones for the hearing-impaired | Ocala.com.

Judge deals blow to advocates for old, disabled

WEST PALM BEACH (AP) — A federal judge struck a blow Tuesday to advocates for the elderly and disabled, removing class-action status from a lawsuit that had argued Florida illegally forces people into nursing homes when they are capable of living elsewhere.

U.S. District Judge Robert Hinkle ruled in favor of one of the institutionalized Medicaid patients who sued the state of Florida in 2008, saying they should be allowed to live in other settings. But by removing the suit’s class status, the ruling applies to just one person, Clayton Griffin, instead of the 8,500 plaintiffs estimated by attorneys to be in a similar situation.

“It is a limited victory,” said David Bruns, a spokesman for AARP, the nonprofit group for those 50 and over which took up the case up on the behalf of the plaintiffs. Southern Legal Counsel also joined AARP in that action.

Filed just shy of four years ago and argued in court early last year, the lawsuit has dragged on so long that of the original seven plaintiffs, five have died. A sixth, according to the judge’s written decision, said he no longer wished to leave a nursing home after relatives moved away.

Because of that, Hinkle vacated the class action he previously had granted, also citing changes to the state Medicaid program have ensured peop

via Judge deals blow to advocates for old, disabled | StAugustine.com.

Year-End Message | Executive Director

Dear Friends of the Center for Independent Living of North Central Florida (CILNCF),
 
The CILNCF recently held its annual staff luncheon, during which we reviewed the previous year’s accomplishments. Last year’s  accomplishments included 15 wheelchair ramps built, 2,200 Sign Language Interpreting assignments completed, nearly 2,000 ADA Paratransit Applications processed, a 100% graduation rate among high school seniors enrolled in our youth program, over 100 vocational evaluations being conducted, the Employment Program helped more than 30 consumers find work, over 2,000 consumers received assistive technology equipment and 12 consumers were transitioned out of nursing homes and back into the community!

Our record of producing such outcomes for the past 30 years, has deservedly made the Center for Independent Living of North Central Florida the area’s leading disAbility Resource Center.  So as we enter this holiday season and prepare to begin our 31st year of assisting people with disabilities, our Board, Staff and Consumers are together launching our first ever “End of the Year Campaign Drive”.  We do so in the hope of raising awareness as well as much needed support for our program that builds wheelchair ramps free-of-charge for people who need one, but who cannot afford to have one built.

In 2011, the CILNCF served over 4,000 individuals with disabilities.  As described above, we were able to build 15 wheelchair ramps, however that was from a waiting list of more than 100.  As we go into the new program year, we are reaching out to the community and asking for your support to help us build even more ramps in 2012, such as the ramp we built for Diana. 

Diana contacted one of our Consumer Specialists this past May, explaining that she was in dire need of a wheelchair ramp.  For over two years, family members and friends had to literally help pull her up and down steps, just to get in and out of her own home.  Imagine not being able to come and go from your own home as you please, being so dependent on others.  Through our partnership with Christians Concerned for the Community, the CILNCF helped Diana receive a newly build ramp, leading to a new outlook on a more independent life. 
 
This is one small example of how the CILNCF helps individuals with disabilities with limited financial means and opportunities.  Ramps are built at no cost to the recipients and your gift will have significant impact in the lives of our consumers.  100% of every dollar donated to this endeavor will be used towards the expenses related to building a ramp, such as purchasing supplies to working with volunteers or contractors.
 
One small gift from you will make a big difference in the lives of people with disabilities, especially during the holidays.  If you would like to make a tax deductable donation to our wheelchair ramp building program, please make your donation payable to:
The Center for Independent Living of North Central Florida and mail us at:
 
Center for Independent Living of North Central Florida
(CILNCF)
222 SW 36th Terrace
Gainesville, FL 32607
 
Thank you for your time and support! We will report back to you on the success of our campaign and please don’t hesitate to call or email with any questions.
Sincerely,
 
William

William D. Kennedy Executive Director

 

CIL & University of Florida Campaign for Charities


The Center for Independent Living’s 2011 UFCC # is 3025

Each fall, UF sponsors the UF Campaign for Charities (UFCC) to raise money for nonprofit, health and human service oriented organizations in Gainesville and surrounding areas. The campaign allows employees to give to one or more campaign charities through payroll deduction, cash, check, or bank card.


100% of all funds donated to the Center for Independent Living through the campaign are used to:

  1. Build wheelchair ramps at NO COST for people who cannot afford to have one built themselves.
  2. Provide assistance to people with disabilities wanting out of nursing homes, by providing financial assistance for such things as rental application fees, rental deposits, utility deposits, etc.

Imagine needing to rely on a wheelchair for your daily mobility.  Now imagine that your home is not accessible and because you live on a fixed income, you are without the financial means to afford the cost of having a wheelchair ramp built (Average cost is approximately $1,500).  How are you going to get in and out of your own home to access the community in which you live?  How will you go to school, work, shopping, etc.?

For far too many people, living right here in Gainesville and Alachua County, this is their reality.  It should be unacceptable for even one (1) person to be living in such a circumstance.  However, right now the Center for Independent Living has nearly 100 people on our waiting list for a wheelchair ramp.  

When a person is without the ability to enter and exit their own home as easily as anyone else, many side effects arise… none of which are good.  One of the more concerning effects of such inaccessibility at home is isolation.

Pictured is an example of the real, positive & significant impact your contribution can have on the life of someone. 

When the Center for Independent Living applies your contribution toward the cost of building a wheelchair ramp all (100%) of your contribution goes toward the cost materials needed to build the wheelchair ramp.  We then join with partnering organizations to mobilize volunteers who generously give of their time and expertise to provide the labor to build the ramp.

Join us, and together we can make a REAL DIFFERENCE in the life of a REAL PERSON. 

 

via University of Florida Campaign for Charities.

Affordable Care Act (ACA) | People with disAbilities

What the Affordable Care Act Means for

Americans with Disabilities

Posted May 21, 2010 to www.healthreform.gov

By Henry Claypool, Director of Office on Disability

As the 20th Anniversary of the Americans with Disabilities Act and 11th Anniversary of the Olmstead v. LC decision approach, it is exciting to reflect on how the Affordable Care Act (ACA) advances the principles of equality, barrier removal, and community integration embodied in these landmark events.

Historically, people with disabilities have been severely disadvantaged in accessing private health insurance, subject to discrimination based on pre-existing conditions, benefit limits and exclusions, and at risk of losing coverage on short notice. Medicaid’s institutional bias — allowing coverage of home and community based long term care services and supports while requiring coverage of nursing home services — perhaps kept too many people with disabilities in nursing homes, despite clear consumer preference for and the cost-effectiveness of community living. Exam equipment isn’t designed to meet persons with disabilities’ needs and knowledge on existent health disparities has not been used to address these concerns.

The Affordable Care Act makes considerable strides in addressing these concerns and advancing equality for persons with disabilities. This year, the new law will end pre-existing condition discrimination for children with disabilities, dropping people from insurance plans when they become sick and lifetime benefits limits. By 2014, insurance companies will be barred from discrimination on the basis of medical history or genetic information, and precluded from setting unreasonable annual limits. Plans will be required to provide information in a user-friendly manner that clearly explains what is and isn’t covered.

 The  Affordable Care Act advances community living by extending the Money Follows the Person program, improving the Medicaid home-and-community-based services (HCBS) option, and creating new options and incentives making it easier for states to provide HCBS – including Community First Choice. Yesterday, the Centers for Medicaid and Medicare Services (CMS) released a letter to State Medicaid Directors stressing our commitment to Olmstead implementation and community integration. Outside Medicaid, the new law provides for the creation of a new, voluntary, self-insured insurance program (CLASS Act) that helps individuals pay for long-term supports and services if they develop a disability.

 The Affordable Care Act enhances health care delivery by establishing standards for medical diagnostic equipment so people with disabilities can access vital preventative care, instituting data collection, enhancing providers’ cultural competency and improving care coordination between Medicare and Medicaid for people with chronic conditions.

This is just the leading edge of change, which will allow a health care system better attuned to the needs of people with disabilities, while honoring the principles of equality, inclusion and community living!

 

 

Pre-Existing Condition Insurance Plan

Pre-Existing Condition Insurance Plan

In March of 2010, Congress passed and President Obama signed the Affordable Care Act—the new health insurance law. The law creates a new program – the Pre-Existing Condition Insurance Plan — to make health insurance available to you if you have been denied coverage by private insurance companies because of a pre-existing condition.

The Pre-Existing Condition Insurance Plan (PCIP), which is administered by either your state or the U.S. Department of Health and Human Services, provides a health coverage option if you have been without health coverage for at least six months, you have a pre-existing condition or have been denied health coverage because of your health condition, and are a U.S. citizen or reside here legally.

This program may be able to help you, if you’ve been locked out of the insurance market, until 2014. In 2014, you will have access to affordable health insurance choices through a new competitive marketplace called an Exchange and you will no longer be discriminated against based on a pre-existing condition.

The Program:

  1. Covers a broad range of health benefits, including primary and specialty care, hospital care, and prescription drugs.
  2. All covered benefits are available to you, even to treat a pre-existing condition.
  3. Doesn’t charge you a higher premium just because of your medical condition.
  4. Doesn’t base eligibility on income.

The U.S. Department of Health and Human Services, with the help of the U.S. Office of Personnel Management and the U.S. Department of Agriculture’s National Finance Center, runs Pre-Existing Condition Insurance Plan in 23 states and the District of Columbia. The federal government contracts with a national insurance plan to administer benefits in those states. In the other 27 states, there are state-based programs.  The program may vary depending on what state you live in. Check out the State Plans page to learn more about how the Pre-Existing Condition Insurance Plan works in your state

via Pre-Existing Condition Insurance Plan | Florida Spinal Cord Injury Resource Center.

National Disability Employment Awareness Month 2011 — Profit by Investing in Workers with Disabilities

National Disability Employment Awareness Month 2011To celebrate National Disability Employment Awareness Month, the Office of Special Education and Rehabilitative Services OSERS is highlighting projects and initiatives funded by the Office of Special Education Programs OSEP, the Rehabilitation Services Administration RSA and the National Institute on Disability and Rehabilitative Research NIDRR that improve employment outcomes for people with disabilities, including transition-aged youth.Building on a strong education foundation is the key to launching the future success of young people with disabilities. Thank you for all you are doing to support and encourage individuals with disabilities as they work towards realizing their career and life goals.Sincerely,Alexa Posny, OSERS Assistant Secretary

via National Disability Employment Awareness Month 2011 — Profit by Investing in Workers with Disabilities.

2011 Raffle Fundraiser a BIG Success

Raffle winner Dr. Mike Moorehouse, UF College of PHHP

 
The Center for Independent Living would like to acknowledge and thank the following list of amazing local businesses and business leaders who gave so generously in support of our 2011 Raffle fundraiser! We raised nearly $4,000 which all goes toward our youth programs.


 
  

A Touch Of Heaven & Andrea Sylvia
A1 Tree Services, Inc. & Howard Moses
Alter Ego Fitness, Kyle Gold & Ronald Ballatore
Amelia’s & Andy Fass
Best Western Gateway Grand & Ron Gromoll
Cake Classics & Janelle Blackwelder
Carmen Cowart, LMT
Carrabba’s & John Barli
City Crepes, Andi & Keidi Melengu
CILNCF & Debbie Scoggin
Conestoga’s & Rick Robertson
Floating Lotus Spa, Victoria Golden & Ms. Rainsberger
Susie Frinfrock, LMT
Nathalie Fosse, LMT
Gainesville Health and Fitness & Linda Cirulli-Burton
Gator Cinemas & Rami Badawi
Gator Tree Service & Anthony Dobosiewicz
Great Outdoors & Carol Doherty
Hippodrome State Theatre & Kara Winslow
Manuel’s & Marco Chavez
Mildred’s, Stephanie Comstock & April Williams
Napolatano’s & Ginger Nappy
Premium Travel Pro Kit
Red Mango & Jon Austin
Satchel’s & Teresa Zokovitch
Secret Garden Bakery & Sharon Tugman
Nancy Smith, LMT & N’Touch Therapy
Spa Royale & Mary Davis-Grant
Splitz at Funworks & Katie Connolly
Stonewood, Monica Deel & Matt Miller
The Fresh Market
Zell’s Hardware & David Flanders

 

Our Gracious Business Donors

 

State Representative Perry Tours CIL

From left to right; Brian Cole, Esq. (Chairmen, The Able Trust), Representative Keith Perry & William Kennedy, CILNCF Director

Suzanne Homant, President and CEO of The Able Trust helped arrange a tour of our CIL by area State Representative Keith Perry. 

While at our CIL, The Able Trust presented Representative Perry with their prestigious “Legislator of The Year Award” for his work during the last legislative session. 

Rep. Perry toured the CIL with our Executive Director William Kennedy and Youth Services Director, Amy Tharpe. 

Mr. Kennedy is a member of The Florida Association of Center’s for Independent Living (FACIL) and had the opportunity to speak with Rep. Perry about the important services provided by our Center as well as other CIL’s around the State, that assist people with disabilities to remain in the community and out of institutions.

CIL Open House a HUGE Success

This year we paired our Open House with an Emergency Preparedness information session. William Kennedy, CILNCF Executive Director opened the day’s activities, welcoming all in attendance and thanking our expert panel members who had volunteered their time to help educate consumers on how people with disAbilities can best prepare themselves for certain emergency events.

 Jeff Feller, Chief Operations Officer for WellFlorida, our local health planning council took over from there, guiding the morning presentations and assisting with the question and answer portion of the session.

The Expert Panel Members were comprised of professionals and leaders from their respective fields and included:

Opening remarks from expert panel members

Chip Wilson, Statewide Disability Coordinator Emergency Management
David Donnelly, Emergency Management Director of Alachua County
Brad Caron, Health Preparedness Planner Alachua County Health Department
Jeremy Gallman, Director of Safety and Emergency Preparedness, NFR Medical Center
Al Sandrik, Warning Coordination Meteorologist, National Oceanic and Atmospheric Administration

A lunch presentation was also arranged; Al Sandrik, Warning Coordination Meteorologist with the National Weather Service in Jacksonville, National Oceanic and Atmospheric Administration, provided a stimulating and comprehensive lunch presentation about weather tracking, and the impact of hurricanes and additional inclement weather we experience in Florida.

Several phone calls and e-mails were also made to invite assorted vendors to attend our event:  Vocational Rehabilitation, University of Florida (FL Office on Disability and Health, Right to Know Campaign, FL Senior Safety Resource Center), American Red Cross, Alzheimer’s Association, MV Transportation, Elder Options, A-1 Tree Services and Alachua County/City of Gainesville Equal Opportunity offices.

Marketing for the event consisted of creating and mailing flyers to agencies with consumers that could benefit from the emergency preparedness workshop, kits and plans, as well as contacting local media for public service announcements and community calendar posts.

Arrangements were also made for the printing of flyers, posters and forms, as well as for sign language interpreters to be present throughout the workshop and lunch presentation.  Packets were developed for workshop participants that included the agenda, CIL brochure, our Executive Director’s business card and the emergency preparedness plan.  Vendor tables were set up throughout the Center, as well as display tables featuring various CIL programs.

On the day of the Open House, a sign-in table was available and staff assisted throughout the day with participants, directions, questions, crowd control, setting up for lunch, monitoring tables, distributing the emergency preparedness kits, and breaking everything down when the event was complete.  During the event, participants with disabilities were encouraged to fill out a personal information sheet, detailing their disability, in order to receive an emergency preparedness kit.  Green canvas duffle bags with zippered compartments were provided and filled with a variety of emergency supplies that included:  an emergency Mylar blanket, PVC “Easy Tear” duct tape, 2” x 10 yards, 33 piece first aid kit, flashlight with 2 D cells, 9 piece multi tool knife, leather work gloves with a safety cuff, 2 piece light stick set, rain poncho, 6 water packets, USCG approved, signaling whistle, handy pouch kit with toothpaste, toothbrush, comb, soap, shave gel, razor, tissue and shampoo, and a radio/siren combo.

Two local TV stations attended the event and a staff member worked with them to set up the requested interviews with two participants/consumers, a member of our panel and our Executive Director.  Our event was featured on both TV 20 and GTN that evening during the 10pm local news.  Overall, it was a very successful event with over 200 people in attendance!  The CIL staff was happy and satisfied to have served so many individuals with disabilities in our local community.